Review Article
Educational Programs for Family Caregivers in Palliative Care: A Literature Review
Carla Reigada1,2*, José Luís Pais-Ribeiro1 and Ana Novellas3,41Psychology and Educational Sciences Faculty, University of Porto, Porto, Portugal
2Palliative Care Service São João Hospital Centre, Porto, Portugal
3University of Barcelona, Barcelona, Spain
4Catalan Institute of Oncology, Barcelona, Spain
- *Corresponding Author:
- Carla Reigada
Palliative Care Service, Centro Hospitalar de São João
EPE, Alameda Prof. Hernâni Monteiro, 4200 Porto, Portugal
Tel: 351963159800
E-mail: reigadacarla@gmail.com
Received date: July 29, 2014; Accepted date: October 31, 2014; Published date: November 8, 2014
Citation: Reigada C, Pais-Ribeiro JL, Novellas A (2014) Educational Programs for Family Caregivers in Palliative Care: A Literature Review. J Palliat Care Med 4:195. doi:10.4172/2165-7386.1000195
Copyright: 2014 Reigada C, et al. This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
Abstract
Aim: To analyse the literature about educational programs aimed towards empowering caregivers of patients in palliative care (PC) attending to the conceptual difference between programs and psychosocial interventions. Method: Review of the literature published in English, Portuguese and Spanish languages between 01/2009 and 12/2013, supported by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines; PubMed, Scopus and SciELO were searched for studies about caregiver training programs developed in the PC field. 43 Palliative Care Associations listed in the European Association of Palliative Care (EAPC) PC ATLAS were contacted in order to complement this literature review. Results: Eight studies were identified and analysed concerning subject matter, measurement instruments, location, results, strategy and duration of the programs. All educational programs addressed issues related to the context of end of life; Program duration ranged from three weeks to two years, and took place in the community and in hospital or PC centres; all programs evaluated their respective impact using various measurement instruments. Conclusions: This review testifies the lack of publications regarding programs designed and developed to support family caregivers in PC. It is shown that caregivers benefit from support groups and educational programs to promote information and caregiver training, but perhaps the lack of funding for this kind of interventions can affect the caregiver’s treatment.
