Research Article
Respite Model of Palliative Care for Advanced Cancer in India: Development and Evaluation of Effectiveness
Naveen Salins1, Mary Ann Muckaden2*, Jayeeta Chowdhury3 and Jayita Deodhar11Consultant and Associate Professor, Department of Palliative Medicine, Tata Memorial Centre, Parel, Mumbai, India
2Professor and Head, Department of Palliative Medicine, Tata Memorial Centre, Parel, Mumbai
- *Corresponding Author:
- Muckaden MA
Professor and Head, Department of Palliative Medicine
Tata Memorial Centre, Parel, Mumbai
Tel: 09920271114
E-mail: muckadenma@tmc.gov.in
Received date: July 24, 2015 Accepted date: August 11, 2015 Published date: August 14, 2015
Citation: Salins N, Muckaden MA, Chowdhury J, Deodhar J (2015) Respite Model of Palliative Care for Advanced Cancer in India: Development and Evaluation of Effectiveness. J Palliat Care Med 5:229. doi:10.4172/2165-7386.1000229
Copyright: © 2015 Salins N, et al. This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
Abstract
Palliative care need is highest among low and middle-income countries and a significant gap exists between palliative care need and provision in India. Patients with life limiting illnesses such as cancer are discharged home prematurely with poorly controlled physical symptoms, unresolved psychological and social issues, and unprepared caregiver and with no plans for continuity of care. Respite model of palliative care is a step down from acute setting, where patients are admitted briefly to a respite home for symptom control, and management of psychosocial issues,caregiver empowerment, liaison and networking with local family physician and local palliative care network and planned discharge home. The effectiveness of the project will be measured using four parameters (a) improvement in symptoms using Edmonton symptom assessment scale (ESAS) (b) quality of life using EORTC QLQ-PAL15C (c) family satisfaction using selected items of FAMCARE questionnaire and d. care giver empowerment using a semi structured questionnaire. This project is expected to benefit around 1500 adult palliative care patients and 150 pediatric palliative care patients. The research article highlights needs assessment, concept, project development, research design and proposed impact of the project.
